Puas zoo rau noj tshuaj thaum cev xeeb tub?


Puas zoo rau noj tshuaj thaum cev xeeb tub?

Raws li kev mob lub cev, kev noj tshuaj sodium valproate thaum cev xeeb tub kuj ua rau menyuam yaus muaj kev pheej hmoo ntawm kev loj hlob thiab kawm nyuaj. Tab sis, yog tias koj cia siab rau cov tshuaj no los tswj koj qhov muaj feem ua rau muaj mob tuag tes tuag taw, npaj tswv yim rau kev xeeb tub yuav ua rau muaj kev ntxhov siab thiab txhawj xeeb txog kev yuav tswj hwm koj tus kheej li cas, tsis tas yuav ua rau tus me nyuam muaj kev pheej hmoo.

Cov kws so hauj lwm (neurologist) Dr Jim Morrow hais tias cov lus qhia zoo tshaj plaws yog tham nrog tus kws kho mob vwm thaum koj xeeb tub. “Tau xa mus rau tus kws kho mob neurologist thiab lawv yuav nrog koj tham txog cov yam zoo, kev xav, kev pheej hmoo thiab cov txiaj ntsig ntawm cov tshuaj tshwj xeeb uas koj nyob nrog,” nws hais.

“Kuv yuav ua qhov ntawd nrog ib qho yeeb tshuaj, tsis yog muaj txiaj ntsig,” Morrow ntxiv. “Txawm hais tias qee yam lwm yam tshuaj vwm zoo li muaj kev nyab xeeb los ntawm qhov tsis txaus siab thaum yug los ntawm kev xav, muaj qee lwm tus uas pom tias muaj qee qhov txaus ntshai – cov no suav nrog phenytoin, primidone, phenobarbital, carbamazepine, topiramate thiab tejzaum lamotrigine. Yuav ua li cas ntxiv, theem ntawm cov tshuaj kho mob vwm hauv cov hlab ntshav tuaj yeem poob thaum cev xeeb tub, vim tias qhov hloov pauv hauv cov metabolism. Qhov ntawd txhais tau tias lawv tsis ua hauj lwm zoo, yog li qhov chua leeg tuaj yeem ua txhaum. “

Nkag siab cov kev pheej hmoo

Raws li yog ib tus kws tshaj lij pabcuam rau kev saib xyuas Epilepsy Action, Morrow tau tsim UK Tebchaws Txoj Kev Mob Hlav thiab Kev Sau Npe Kev Xeebtub, uas yog lub luag haujlwm rau coj cov kev pheej hmoo no mus rau lub teeb thaum lawv kawm txog cov teebmeem ntawm ntau ntawm kev kho mob tshiab thiab laus dua.

“Dab tsi peb pom yog cov tshuaj tshiab feem ntau muaj kev nyab xeeb tab sis sodium valproate, uas tau nyob ib puag ncig txij xyoo 1970, tau cuam tshuam nrog kev pheej hmoo ntau ntawm kev ua txhaum loj thiab kawm nyuaj dua li lwm yam tshuaj,” nws piav qhia.

“Rau cov poj niam noj nws thaum cev xeeb tub, muaj txog 8-10% kev phom sij ntawm kev tsis ncaj ncees – suav nrog spina bifida, pob txha ntsej muag, thiab pob zeb tawv (pob ko taw ko taw) – thiab txog li 30% ntawm cov menyuam muaj qee yam kev kawm nyuaj,” nws hais ntxiv. “Cov tshuaj no tau ua rau cov menyuam yaus ntau dua li thalidomide, vim tias tej zaum nws tseem yog qhov thib ob uas siv los tiv thaiv tus mob epileptic hauv tebchaws Askiv thiab thoob ntiaj teb.”

Qhov teeb meem, Morrow piav qhia, yog tias nws yog tshuaj zoo los tiv thaiv kho tus mob epileptic. Qhov tseeb, rau qee yam mob qaug dab peg – tshwj xeeb tshaj yog cov neeg vwm myoclonic epilepsy – nws hais tias: “Nws yog qhov tshuaj zoo tshaj plaws los ntawm kev nyob deb, thiab qhov tseeb tej zaum tsuas yog cov tshuaj uas ua haujlwm rau hom mob vwm sib kis.”

Nws yog qhov tsis yooj yim txaus ntshai uas yuav hnyav – thiab, txawm tias dhau los, cov poj niam zoo li Hannah tau dhau los ntau dhau los pom lawv tus kheej cia los ntawm qhov tsis muaj cov ntaub ntawv tsis raug.

‘Kuv tau ua raws li kuv tau hais rau’

Tom qab raug mob ntawm nws nchuav menyuam, Hannah paub npaj ua ntej thib ob ncig. Nws hais tias “Kuv tsum tsis noj sodium valproate thiab pib noj folic acid ua ntej kuv xeeb tub nrog kuv tus tub, thaum kuv muaj 23 xyoos,” nws hais. “Kuv tsis muaj mob qaug dab peg, yog li kuv tsis tau noj tshuaj rau mob vwm, thiab nws yog kev zoo siab thiab noj qab haus huv, cev xeeb tub. Kuv tus tub tau noj qab nyob zoo.”

Thaum lub sijhawm nws cev xeeb tub thib peb, txawm li cas los xij, Hannah hais tias nws txoj kev qias neeg tsis tuaj yeem tswj tau, thiab nws tau rov qab muaj txiaj ntsig.

“Peb tau tso tseg los ntawm lub sijhawm kuv cev xeeb tub tab sis kuv tau noj folic acid txhua hnub hauv rooj plaub,” nws piav qhia. “Thaum kuv tau cev xeeb tub, cov kws kho mob tau coj kuv tawm ntawm lub txiaj ntsig vim tias lawv txhawj xeeb txog tus mob spina bifida thiab lub cev tsis zoo rau tus menyuam.”

Vim tias muaj mob chua leeg tsis tu ncua, Hannah tau raug muab cov tshuaj sib txawv los tiv thaiv, tab sis nws tsis tuaj yeem tswj hwm. “Ib zaug kuv tau mus rau hauv kuv thib peb lub hlis, cov kws kho mob tau hais tias kuv yuav tsum rov qab mus rau sodium valproate vim tias qhov chua leeg tuaj yeem ua rau yug tau ntxov ntxov,” nws hais.

“Kuv tau hais kom cov tshuaj tsuas cuam tshuam rau cov menyuam hauv plab lub sijhawm thawj peb lub hlis, thaum lub cev tsis zoo tuaj yeem tshwm sim. Tsis muaj leej twg qhia kuv txog cov kev pheej hmoo rau tus menyuam txog ntawm cov teeb meem mob hlwb,” nws hais ntxiv. “Yog li kuv tau ua raws li kuv tau hais, tab sis txawm tias sodium valproate tsis cheem kuv qaug dab peg lub sijhawm ntawd.”

Hannah tus ntxhais tau yug los nrog kev kawm nyuaj, tau noj tshuaj txij thaum nws muaj hnub nyoog 10 xyoo, thiab yuav tsum tau txais kev saib xyuas ib leeg ntawm tsev kawm ntawv.

Hannah tau hais tias “nws tau nyuaj siab tias nws lub neej tag vim qee yam kuv tau coj, uas kuv tau hais tias tau pab nws. Kuv xav tias nws ua txhaum loj heev,” “Yog hais tias kuv tau raug qhia kom zoo txog cov kev pheej hmoo, Kuv twv yuav raug tsis tau thim rov qab rau sodium valproate,” nws hais ntxiv.

Kev txiav lossis hloov cov tshuaj noj

Qhov tseem ceeb tshaj plaws uas yuav tsum nco ntsoov yog tias, txawm hais tias koj lub cev xeeb tub tau npaj lub hli ua ntej lossis los ntau yam tsis tau xav txog, koj yuav tsum tsis txhob tso tseg koj cov tshuaj sai. Txhua yam pauv hloov yuav tsum maj mam ua maj mam, nyob rau hauv kev saib xyuas kev kho mob, hauv kev sab laj nrog kws kho paj hlwb uas yog tus kws kho mob tshwj xeeb.

“Yog tias qee leej tau qaug dab peg mus ntev tshaj li ib xyoos, lossis zoo dua li ob xyoos, koj yuav xav txiav txim siab lawv tawm ntawm lawv cov tshuaj, tab sis koj yuav tsum hnyav rau cov kev pheej hmoo ntawm kev huam mob rov tuaj, vim tias qhov ntawd yuav muaj kev phom sij rau leej niam thiab tus me nyuam, “Tag kis piav qhia. “Lwm txoj kev xaiv yog sim hloov mus rau cov tshuaj uas muaj kev nyab xeeb dua hauv kev xeeb tub, thiab rau feem ntau ntawm cov mob vwm tseem muaj lwm txoj kev xaiv tau zoo ib yam li cov tshuaj muaj txiaj ntsig – peb nyiam siv cov lamotrigine thiab Lamictal® (cov npe tshuaj rau lamotrigine),” nws ntxiv.

Koj yuav tsum tau tham txog kev noj cov tshuaj folic acid ntxiv los ntawm lub sijhawm koj tsum tsis siv kev tswj kom tsis txhob muaj menyuam yaus kiag li. Txhua tus poj niam raug hais kom noj 400 micrograms ib hnub ntawm folic acid los txiav qhov kev pheej hmoo ntawm tus mob spina bifida, txij li ua ntej lawv cev xeeb tub mus txog peb lub hlis rau hauv plab. Tab sis yog tias koj noj tshuaj vwm, lub koob tshuaj pom zoo yuav luag txhua 5 mg (milligrams) ib hnub rau tib lub sijhawm.

Yog tias valproate tiag tiag yog cov tshuaj nkaus xwb uas ua haujlwm, Morrow hais tias cov kws kho mob yuav sim txo qhov tsawg kawg, txawm hais tias qhov no tuaj yeem nyuaj hauv kev coj ua.

“Lwm txoj kev xaiv, yeej yog rau tus poj niam, yog tias nws xav tau, los tawm ntawm nws ib qho twg, yog tias nws kam txais nws tias nws tuaj yeem muaj qaug dab peg,” nws piav qhia. “Tus me nyuam mos zoo nkauj insulated los ntawm qaug dab peg, kom ncaj, yog li nws muaj kev pheej hmoo ntau rau tus poj niam nws tus kheej. ib qho qaug dab peg lossis pawg foob tau ntev tshaj li ib nrab teev) tuaj yeem ua rau lub hlwb puas lossis tuag taus. “

Thaum kawg, Morrow qhia, xyuas seb puas muaj kev sib koom tes / chaw kuaj mob hauv koj thaj chaw thiab tau txais koj tus kheej hauv kev yog tias ua tau, yog li tus kws kho mob hlwb tuaj yeem ua haujlwm nrog koj cov kws kho mob los saib xyuas cov xwm txheej thoob plaws hauv koj lub cev xeeb tub.

* Cov npe tau hloov pauv los tiv thaiv tus kheej.

Txhawm rau pab tshawb fawb txuas ntxiv ntawm tus mob vwm thiab cev xeeb tub, koj tuaj yeem koom nrog UK Epilepsy thiab Cev Rau Npe Xeeb Tub.

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